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Charity Summary
Charity Details
Cure ECHS1D Aotearoa Charitable Trust
CC62797
N/A
Registered
Registration details
16/10/2024
March 31
Address for service
83 Edens Road
RD 1
Hope
Richmond
7081
Charity's other details
https://www.facebook.com/share/1E7SdPyW9A/?mibextid=wwXIfr
Organisation with a focus on the following communities:
Purpose & Structure
Charitable Purpose
The purpose of the Trust is to promote the prevention or control of diseases caused by ECHS1D deficiency. ECHS1D is an under researched genetic disorder which causes early onset neurodegeneration in babies. The disease is prevalent in Maori and Pacifica people.
Note: The main sectors, activities and beneficiaries are bolded.
Sponsors / undertakes research
Provides advice / information / advocacy
Fund-raising
Education / training / research, Health
People with disabilities
Annual Returns
Annual Returns are due within 6 months of a charity’s balance date (financial year-end), or a longer period if an extension has been granted.
Note: Charities that use the Tier 4 Combined Form to file their annual returns do not need to file their financial statements separately. The financial statements are included in their annual return summary.
Officer Details
Officers
Charity Updates
Here is a list of all the details changed by the charity, for example adding or removing officers, amending rules, changing balance dates or updating address details.
Charity Documents
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No supporting documents.