Our purpose is to help create awareness in New Zealand of Ehlers Danlos Syndrome. Connecting Clinicians and patients to one another, and helping with further research to help with further understanding of Ehlers Danlos Syndrome.
Note: The main sectors, activities and beneficiaries are bolded.
Provides advice / information / advocacy
Acts as an umbrella / resource body, Provides services (e.g. care / counselling)
Education / training / research, People with disabilities
People with disabilities
The chair person is located in Auckland.
Since the majority all of our members suffer from Ehlers Danlos Syndrome themselves, and we're all spread over, we're hoping to create awareness with projects and fundraising through out New Zealand. We have a give a little page where we can filter some of the donations through. All members of our society have a chance to vote on all actions decissions made, and the vote is one by majority vote.
We have one secratery, and 2 treasurers.
Annual Returns are due within 6 months of a charity’s balance date (financial year-end), or a longer period if an extension has been granted.
There are no public Update Details change records for this charity.