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Charity Summary

Charity Details

Ehlers-Danlos Society New Zealand Incorporated

Registration details

March 31

Address for service

8B Heatherleigh Rise

Charity's other details


Purpose & Structure

Charitable Purpose

Our purpose is to help create awareness in New Zealand of Ehlers Danlos Syndrome. Connecting Clinicians and patients to one another, and helping with further research to help with further understanding of Ehlers Danlos Syndrome.

Note: The main sectors, activities and beneficiaries are bolded.

Provides advice / information / advocacy

Acts as an umbrella / resource body, Provides services (e.g. care / counselling)


Education / training / research, People with disabilities

People with disabilities

General public

Entity Structure

The chair person is located in Auckland. Since the majority all of our members suffer from Ehlers Danlos Syndrome themselves, and we're all spread over, we're hoping to create awareness with projects and fundraising through out New Zealand. We have a give a little page where we can filter some of the donations through. All members of our society have a chance to vote on all actions decissions made, and the vote is one by majority vote. We have one secratery, and 2 treasurers.

Annual Returns

Annual Returns are due within 6 months of a charity’s balance date (financial year-end), or a longer period if an extension has been granted.

Due Date Date Submitted Total Income Total Expenditure Financial Statements Annual Return Summary
30/09/2019 - - - - To be filed

Officer Details


Officer Name Position Effective Date
Ben Cremer Officer 1/05/2018
Kelly Jessie Zane McQuinlan Chair Person 1/05/2018
Lisa Preston Treasurer/Officer 1/05/2018
Pamela Buckingham Officer 1/05/2018
Stephanie Aston Secratary 1/05/2018

Charity Updates

There are no public Update Details change records for this charity.

Charity Documents