Charities Logo
Charities Tag Line - Supporting Charities in New Zealand for Stronger Communities

Use this to find information about a particular charity.

Charity Summary

Charity Details

Ehlers-Danlos Society New Zealand Incorporated
Ehlers-Danlos Syndromes New Zealand

Registration details

March 31

Address for service

8B Heatherleigh Rise

Charity's other details

Facebook icon image

Purpose & Structure

Charitable Purpose

Our mission is to improve the wellbeing of those with Ehlers-Danlos Syndromes/Hypermobility Spectrum Disorders in Aotearoa New Zealand by raising awareness, improving knowledge by health professionals and providing support to patients.

Note: The main sectors, activities and beneficiaries are bolded.

Provides advice / information / advocacy

Acts as an umbrella / resource body, Provides services (e.g. care / counselling)


Education / training / research, People with disabilities

People with disabilities

General public

Entity Structure

Ehlers-Danlos Society New Zealand leadership consists of the President, the Treasurer and the Secretary, who are the three volunteers that created the society. A larger decision-making committee will be in place in 2019-2020. Free membership in the Society is available to all New Zealanders with Ehlers-Danlos Syndrome or Hypermobility Spectrum Disorder.

Annual Returns

Annual Returns are due within 6 months of a charity’s balance date (financial year-end), or a longer period if an extension has been granted.

Due Date Date Submitted Total Income Total Expenditure Financial Statements Annual Return Summary
30/09/2020 - - - - To be filed
30/09/2019 9/09/2019 $50 $0

Officer Details


Officer Name Position Effective Date
Natalie Dudley Committee Member 11/07/2019
Kylie Burling Committee Member 10/07/2019
Alli Jackson Committee Member 9/07/2019
Angela Desmarais Committee Member 9/07/2019
Kelly Jessie Zane McQuinlan President 1/05/2018
Lisa Preston Treasurer/Officer 1/05/2018
Pamela Buckingham Committee Member 1/05/2018

Past Officers

Officer Name Position Past Since
Stephanie Aston Secratary 15/07/2019
Ben Cremer Officer 1/07/2019

Charity Updates

Here is a list of all the details changed by the charity, for example adding or removing officers, amending rules, changing balance dates or updating address details.
Date Created Reference View Summary (.pdf <1MB)
10/10/2019 NOC003
9/09/2019 NOC002

Charity Documents