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Charity Summary

This is the charity information for: The New Zealand Institute For Rare Disease Research Limited.

Charity Details

Deregistration details

The New Zealand Institute For Rare Disease Research Limited
The NZ Rare Disease Biobank
CC25893
9429035014973
Deregistered
13/01/2017

Financial information at the time of Deregistration:

$6,695
$668

The Charity’s accumulated assets and income have been:

  • Transferred to another Organisation that is not a registered Charity

    Organisation:

    University of Otago


Below are details of The New Zealand Institute For Rare Disease Research Limited at the date of deregistration:

The New Zealand Institute For Rare Disease Research Limited
The NZ Rare Disease Biobank
CC25893
9429035014973
Deregistered

Registration details

15/06/2008
June 30

Registration history

Registration Action Date effective Reason
De-registered 12/01/2017 This entity was removed from the Charities Register at their request under section 32(1)(f) of the Charities Act 2005. The entity is no longer carrying on its operations.
Registered 15/06/2008

Address for service

PO Box 38538
Wellington Mail Centre
Lower Hutt
5045
104 Vivian Street
Te Aro
Wellington
6011

Charity's other details

04 471 2226
admin@nzord.org.nz
http://www.nzirdr.org.nz


Organisation with a focus on the following communities:

N/A

https://www.register.charities.govt.nz/Charity/CC25893

Purpose & Structure

Charitable Purpose

To support, assist and better provide health care and well-being for patients and their families/whanau living with a are disorder in New Zealand.

Note: The main sectors, activities and beneficiaries are bolded.

Other (please state)

(Collect Tissue Samples), Sponsors / undertakes research, Acts as an umbrella / resource body, Provides buildings / facilities / open space

Other (please state)

(Rare Disease Research), Education / training / research, Health, People with disabilities

Other (please state)

(People With Rare Disabilities), Other charities, People with disabilities

Entity Structure

NZIRDR is a registered charity organisation that held under NZORD. There is a board of three trustees.

Annual Returns

Annual Returns are due within 6 months of a charity’s balance date (financial year-end), or a longer period if an extension has been granted.

Note: Charities that use the Tier 4 Combined Form to file their annual returns do not need to file their financial statements separately. The financial statements are included in their annual return summary.

Exemptions

This charity has been granted an exemption from filing an annual return by 31 December 2008 under Section 43 of the Charities Act 2005. The first annual return is due by 31 December 2009.

For Year Ended Due Date Date Submitted Total Income Total Expenditure Financial Statements Annual Return Summary
30/06/2017 31/12/2017 - - - To be filed To be filed
30/06/2015 31/12/2015 17/12/2015 $84 $1,637 load annual return's financial documents spinner gif
Included in Annual Return
30/06/2014 31/12/2014 21/12/2014 $25,835 $34,087 load annual return's financial documents spinner gif
Included in Annual Return
30/06/2013 31/12/2013 15/01/2014 $3,646 $30,175 load annual return's financial documents spinner gif
Included in Annual Return
30/06/2012 31/12/2012 27/11/2012 $639 $18,379 load annual return's financial documents spinner gif
Included in Annual Return
30/06/2011 31/12/2011 20/12/2011 $3,608 $18,112 load annual return's financial documents spinner gif
Included in Annual Return
30/06/2010 31/12/2010 17/12/2010 $24,000 $8,213 load annual return's financial documents spinner gif
Included in Annual Return
30/06/2009 31/12/2009 18/12/2009 $22,000 $13,000 load annual return's financial documents spinner gif
Included in Annual Return
30/06/2008 31/12/2008 - - - To be filed To be filed

Officer Details

Officers

Officer Name Position Effective Date
Letitia Marie O'Dwyer Chief Executive 20/08/2015
Roger Michael Eccles Director 22/12/2004

Past Officers

Officer Name Position Past Since
Lucy Elwood Trustee 8/12/2016
John Forman Executive Director 15/06/2015
Graeme Roderick Milne Director 31/07/2014
Jean Sutherland Fleming Director 31/07/2014

Charity Updates

Here is a list of all the details changed by the charity, for example adding or removing officers, amending rules, changing balance dates or updating address details.
Date Created Reference View Summary (.pdf <1MB)
12/01/2017 NOC009
19/11/2015 NOC007
15/06/2015 NOC006
22/12/2014 NOC005
15/01/2014 NOC004
17/12/2010 AR003
18/12/2009 AR002

Charity Documents

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Date Uploaded Document Type Reference Name

No supporting documents.